Michael John Carley's Blog (37)

Dr. Barry M. Prizant to receive GRASP's 2013 Divine Neurotypical Award (the "DNA")

As we prepare for the 2013 GRASP benefit on Tuesday, May 14 at DCTV on 87 Lafayette Street in New York City, we want to showcase the recipients of our three awards. This is the third of these three posts.  

The 2013 Divine Neurotypical Award (the "DNA"): Dr. Barry M. Prizant  …

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Added by Michael John Carley on March 27, 2013 at 7:20pm — No Comments

Bob Hedin to be awarded the 2013 GRASP Distinguished Spectrumite Medal (the "DSM")

As we prepare for the 2013 GRASP benefit on Tuesday, May 14 at DCTV on 87 Lafayette Street in New York City, we want to showcase the recipients of our three awards. This is the second of these three posts.

 

The 2013 Distinguished Spectrumite Medal (the "DSM"):

Bob Hedin

 …

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Added by Michael John Carley on March 26, 2013 at 10:30pm — No Comments

"Far From the Tree" author, Andrew Solomon to receive the 2013 GRASP Friend and Benefactor Award

As we prepare for the 2013 GRASP benefit on Tuesday, May 14, we want to showcase the recipients of our three awards. This is the first of these three posts.

 

The 2013 Friend and Benefactor Award (the "FAB"):

Andrew Solomon

 

Listed by many…

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Added by Michael John Carley on March 12, 2013 at 5:00pm — No Comments

On the shift from Executive Director to "Founder"

Dear spectrumites, families, friends, and colleagues,

 

As you have heard, I will be stepping down as the Executive Director of GRASP and shifting into a role of "Founder," while retaining a Board seat. In this new position I will continue to act as a spokesperson (media and otherwise) for GRASP, but will no longer run our day-to-day operations. 

 

In essence, and with your support, we accomplished everything we set out to do in 2003 when we started GRASP. And in…

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Added by Michael John Carley on March 1, 2013 at 5:30pm — No Comments

Resentment, Liberated: The “Competition of Suffering” is Back

To recap a rough few months . . . 

1. In the fall, GRASP had the displeasure of having to dispute, on a webTV show, that Asperger’s Syndrome (AS) was a “fad.”

2. In that same season, we participated in the first-ever Congressional hearings on autism—unaware of how skillfully…

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Added by Michael John Carley on February 22, 2013 at 11:12am — 5 Comments

GRASP's Michael John Carley Discusses Gun Control and Mental Health on "For Your Ears Only" (formerly "NEWSWEEK OnAir")

Click here to listen to the story. Our segment is between timings 19:16 and 26:12.

Added by Michael John Carley on February 4, 2013 at 8:40am — No Comments

A Year-End Plea from GRASP

Dear all:
 
It's been a tumultuous year for sure, with ups and downs not seen very often in our autism/Asperger world. But at every step GRASP has tried to be involved as a force for good on your behalf, on…
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Added by Michael John Carley on December 30, 2012 at 10:49pm — No Comments

Turnaround Time! Many Media Outlets Trying to Stop the Nonsense Other Outlets Created

All,

A slew of articles have emerged rebuffing the earlier attempts to negatively the autism spectrum in the wake of the Newtown horrors. As many of you all no doubt saw, certain media outlets described autism and Asperger's Syndrome as signifying a great potential for violent behavior . . . even though studies show the exact opposite. While TV news gives a lot of charlatan clinicians airtime, it really seemed more the cause of an irresponsible rush to report than to demonize…

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Added by Michael John Carley on December 18, 2012 at 5:00pm — 7 Comments

Statement from Michael John Carley on the Newtown, CT shootings

We here at GRASP (and I as the father of two school-age boys), cannot be more saddened and devastated by the news of the shootings in Newtown, CT. Our thoughts, wishes, prayers, and heaviest hearts go out to the victims and their families.

 

While it has not been confirmed, two major news outlets are now speculating that the shooter, Adam Lanza, had been diagnosed with Asperger's Syndrome. Much remains to be seen to provide the full picture of who this man was, but AS may…

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Added by Michael John Carley on December 14, 2012 at 11:30pm — 25 Comments

New Research Study Examines Autism/Asperger Research Studies Themselves

All:

In what will come as no surprise to those who suspected as much, and according to the attached study from Focus Autism Other Dev Disabl published online 5 December 2012, by Crosland, Clarke and Dunlap . . . research studies have failed to examine the spectrum in its entirety, thus perhaps skewing many of our perceptions.



Huge thanks to research pro and GRASP friend, Dr. Brenda Smith Myles, who comments . . .…

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Added by Michael John Carley on December 10, 2012 at 3:40pm — No Comments

DSM-5 Update: The Proposed Changes Were Approved. Thank you for trying

All:

Unfortunately, we lost this one. The changes to the proposed criteria for ASD in the new DSM, due out next Spring, were finalized as argued against. 

Things to take heart in:

1. GRASP will be encouraging clinicians to use the new ICD (International classifications of Diseases)…

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Added by Michael John Carley on December 3, 2012 at 11:17am — 2 Comments

Report from the first-ever Congressional Hearings on autism

First off, I want to thank everyone who wrote or posted messages of thanks and/or congratulations. As those of you who watched the proceedings easily saw . . . nobody was expecting THAT. Wow. Four hours of vaccine-causes-autism theory. I was stunned. We haven't been in conversations like that since 2005. This subject didn't just dominate the proceedings, it monopolized them.

What appears to have happened—which I can explain—is that SafeMinds, a vaccine theory organization,…

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Added by Michael John Carley on November 30, 2012 at 6:00pm — 25 Comments

GRASP invited to the congressional hearings on autism, Thursday, November 29.

Whew...GRASP members WILL be represented, and there will be some (if not all) spectrum representation! Thank you for all your calls that made this happen!…

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Added by Michael John Carley on November 26, 2012 at 4:36pm — 3 Comments

GRASP members, please read . . .

Dear spectrumite, family member of a spectrumite, or friend of GRASP:

 

Unlike other organizations, we don’t send out many fundraising appeals. Usually over the course of year, we’ll ask you to participate in our annual benefit, and we’ll ask you to read this fall, pre-holiday letter. GRASP does not charge for membership, nor do we charge admittance to any of our meetings or programs. Everything GRASP does for our members is free.

 

Why? Because compared to other…

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Added by Michael John Carley on November 15, 2012 at 11:52am — No Comments

GRASP Featured in Exceptional Parent (EP) Magazine

All,

The following images have been generously given to us by EP Magazine. Obviously, we're grateful for the exposure. But we also want to convey what a wonderful publication this is, and has been for 41 years. Their Mission Statement alone is remarkable to us for its directness..."Information that matters from people who care." Especially if you're a relative of someone with ANY special need, we hope you'll check them out by clicking …

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Added by Michael John Carley on August 13, 2012 at 12:00am — No Comments

Great Letter from an Autism Speaks Walk Volunteer, to Autism Speaks Executive Director, Liz Feld

(NOTE: The author of this is Michele Montanez, not mjc)

From: Michele Montanez 


Sent: Thursday, August 09, 2012 5:57 PM


To: Liz Feld, Executive Director, Autism Speaks


Subject: Walmart and cures

 

Dear Liz,

 

I had the pleasure of meeting you at the National Conference in Chicago a few weeks ago.  We spoke briefly regarding the continued use of the word cure as part of the Autism Speaks lexicon.  I was fairly emphatic that it…

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Added by Michael John Carley on August 10, 2012 at 10:41am — 3 Comments

Understanding the Spectrum of Dysfunction with the DSM-5: A Report to GRASP's members

Please forward and/or re-post to anyone and anywhere you deem appropriate . . .

 

Understanding the Spectrum of Dysfunction with the DSM-5:

A Report to GRASP’s members

 

By Michael John Carley

 

 

On June 19, 2012, GRASP had a chance to talk with the Autism Spectrum Disorder (ASD) Workgroup of the proposed fifth edition of the Diagnostic and Statistical Manual (DSM-5). Higher-ranking Committee members present…

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Added by Michael John Carley on June 28, 2012 at 10:00pm — No Comments

DSM-5 Update: Less Press, More Talking, and Heavier Critiques

Dear all:
 
While there's been a lot less press coverage, there's been more going on behind the scenes so it's been a rather optimistic period in all of this. The Committee has granted GRASP's request for a sit-down (though we haven't worked out a date yet), and we've begun the arduous task of coalitioning with other organizations to demand 1. an Independent Scientific Review of the proposed changes, as…
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Added by Michael John Carley on June 11, 2012 at 5:24pm — No Comments

DSM-5 Update: The Committee Starts to Dig OUT

Please forward to anyone or anywhere you deem appropriate . . . 
 
Dear all:
 
A slew of articles have recently come out. Dr. Allen Frances (architect of the DSM-IV) denounces the ideas and work habits of the Committee again (but this time in the New York Times), the Committee defends itself again, but cracks in the armor have appeared in the removal of two proposed ideas that fell under heavy criticism. No change—yet—to the proposed…
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Added by Michael John Carley on May 14, 2012 at 5:45pm — No Comments

The DSM-5 folks forgot to tell you how you can register your comments

We're so surprised (that's sarcasm, btw, influenced by added disappointment in the APA) . . . 
 
All:
 
(First off, please forward anywhere or to anyone you deem appropriate . . .)
 
Many of you have experienced difficulty trying to register your comments with the APA over the proposed changes to Autism Spectrum Disorder (ASD) in the forthcoming DSM-5. As we let you know a couple of days ago, the Committee has opened…
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Added by Michael John Carley on May 6, 2012 at 8:27pm — No Comments

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