Dear Members, Families, Friends, and Fellow Spectrumites,
I am so excited to be writing this letter to you today as the new Executive Director of GRASP. As the facilitator of the Hudson Valley support group chapter, I have had the privilege of working closely with Michael John, the Board, and the members of this wonderful organization. I have been a witness to and a participant in the great work that we do to spread the word of our mission: which is to improve…Continue
Dear spectrumites, families, friends, and colleagues,
As you have heard, I will be stepping down as the Executive Director of GRASP and shifting into a role of "Founder," while retaining a Board seat. In this new position I will continue to act as a spokesperson (media and otherwise) for GRASP, but will no longer run our day-to-day operations.
In essence, and with your support, we accomplished everything we set out to do in 2003 when we started GRASP. And in…Continue
Added by Michael John Carley on March 1, 2013 at 5:30pm — No Comments
To recap a rough few months . . .
1. In the fall, GRASP had the displeasure of having to dispute, on a webTV show, that Asperger’s Syndrome (AS) was a “fad.”
2. In that same season, we participated in the first-ever Congressional hearings on autism—unaware of how skillfully…Continue
Click here to listen to the story. Our segment is between timings 19:16 and 26:12.
Added by Michael John Carley on February 4, 2013 at 8:40am — No Comments
It's been a tumultuous year for sure, with ups and downs not seen very often in our autism/Asperger world. But at every step GRASP has tried to be involved as a force for good on your behalf, on…
Added by Michael John Carley on December 30, 2012 at 10:49pm — No Comments
A slew of articles have emerged rebuffing the earlier attempts to negatively the autism spectrum in the wake of the Newtown horrors. As many of you all no doubt saw, certain media outlets described autism and Asperger's Syndrome as signifying a great potential for violent behavior . . . even though studies show the exact opposite. While TV news gives a lot of charlatan clinicians airtime, it really seemed more the cause of an irresponsible rush to report than to demonize…Continue
We here at GRASP (and I as the father of two school-age boys), cannot be more saddened and devastated by the news of the shootings in Newtown, CT. Our thoughts, wishes, prayers, and heaviest hearts go out to the victims and their families.
While it has not been confirmed, two major news outlets are now speculating that the shooter, Adam Lanza, had been diagnosed with Asperger's Syndrome. Much remains to be seen to provide the full picture of who this man was, but AS may…Continue
In what will come as no surprise to those who suspected as much, and according to the attached study from Focus Autism Other Dev Disabl published online 5 December 2012, by Crosland, Clarke and Dunlap . . . research studies have failed to examine the spectrum in its entirety, thus perhaps skewing many of our perceptions.
Huge thanks to research pro and GRASP friend, Dr. Brenda Smith Myles, who comments . . .…
Added by Michael John Carley on December 10, 2012 at 3:40pm — No Comments
Unfortunately, we lost this one. The changes to the proposed criteria for ASD in the new DSM, due out next Spring, were finalized as argued against.
Things to take heart in:
1. GRASP will be encouraging clinicians to use the new ICD (International classifications of Diseases)…Continue
First off, I want to thank everyone who wrote or posted messages of thanks and/or congratulations. As those of you who watched the proceedings easily saw . . . nobody was expecting THAT. Wow. Four hours of vaccine-causes-autism theory. I was stunned. We haven't been in conversations like that since 2005. This subject didn't just dominate the proceedings, it monopolized them.
What appears to have happened—which I can explain—is that SafeMinds, a vaccine theory organization,…Continue
Whew...GRASP members WILL be represented, and there will be some (if not all) spectrum representation! Thank you for all your calls that made this happen!…Continue
One of the more common challenges (at least according to the experts) for a child with Asperger Syndrome is developing an understanding of the subtleties of communication. I can't speak for other children, but Haydn definitely has trouble with basic conversation skills. He always asked questions and made little speeches (mostly about fans and lights), but actual conversation is a real challenge.
His initial diagnosis included "Semantic-Pragmatic Language Impairment," which of course…Continue
Added by Ryan on September 11, 2012 at 8:33pm — No Comments
"Stimming" (in quotes for the last time in this story) is fairly common to the autism spectrum. There are a hundred different definitions in a hundred different books and they all are probably correct. I don't believe a simple definition can sum up everything that stimming is, or what it does, for people on the autism spectrum. For example, here is a dictionary definition:
Stimming is a…
Added by Ryan on July 15, 2012 at 8:35pm — No Comments
Rebroadcast from Haydn's World, where we subscribe to the philosophy:
"The autism spectrum is entirely too serious to take seriously."
It's Thursday night and it's time to take a little trip out to the mall to buy some warmer clothes for Haydn. We walk into The Children's Place and Haydn immediately needs to use the potty. Amanda (Mommy) starts looking for clothes while we go check out the bathroom. He goes into the stall alone, comes…Continue
Added by Ryan on December 21, 2011 at 11:00pm — No Comments
Re-broadcasted from "Haydn's World"
Where we subscribe to the philosophy: 'The autism spectrum is entirely too serious to be taken seriously.'
Welcome to Haydn's World...
My son is way too cute to be my kid.
My wife says she sees me in him, but I only see Daddy when he is about to get into trouble. He gives me a…
Added by Ryan on December 12, 2011 at 9:46pm — No Comments
Added by Ryan on December 12, 2011 at 9:30pm — No Comments