All Blog Posts Tagged 'Michael' (20)

A Message from the New Executive Director of GRASP

Dear Members, Families, Friends, and Fellow Spectrumites,

 

            I am so excited to be writing this letter to you today as the new Executive Director of GRASP.  As the facilitator of the Hudson Valley support group chapter, I have had the privilege of working closely with Michael John, the Board, and the members of this wonderful organization.  I have been a witness to and a participant in the great work that we do to spread the word of our mission:  which is to improve…

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Added by Kate Palmer on March 2, 2013 at 8:30pm — 4 Comments

On the shift from Executive Director to "Founder"

Dear spectrumites, families, friends, and colleagues,

 

As you have heard, I will be stepping down as the Executive Director of GRASP and shifting into a role of "Founder," while retaining a Board seat. In this new position I will continue to act as a spokesperson (media and otherwise) for GRASP, but will no longer run our day-to-day operations. 

 

In essence, and with your support, we accomplished everything we set out to do in 2003 when we started GRASP. And in…

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Added by Michael John Carley on March 1, 2013 at 5:30pm — No Comments

Resentment, Liberated: The “Competition of Suffering” is Back

To recap a rough few months . . . 

1. In the fall, GRASP had the displeasure of having to dispute, on a webTV show, that Asperger’s Syndrome (AS) was a “fad.”

2. In that same season, we participated in the first-ever Congressional hearings on autism—unaware of how skillfully…

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Added by Michael John Carley on February 22, 2013 at 11:12am — 5 Comments

GRASP's Michael John Carley Discusses Gun Control and Mental Health on "For Your Ears Only" (formerly "NEWSWEEK OnAir")

Click here to listen to the story. Our segment is between timings 19:16 and 26:12.

Added by Michael John Carley on February 4, 2013 at 8:40am — No Comments

"It's Just an Excuse": Living with Aspergers(inspired by Michael John Carley)

A very familiar thing I hear, quite often actually. First and foremost, allow me to explain to you what an "Invisable Illness" is in case you don't know what that is. An "Invisable Illness" is one that is not usually show, or doesn't seem to be affecting someone's physical features. They are generally more inward and mental. Though some, like Lupis, do affect your mobility as well. This being said, I would like to take this time for anyone willing to listen to explain what is like living…

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Added by Patrick O. Marsh on January 15, 2013 at 9:00pm — 3 Comments

A Year-End Plea from GRASP

Dear all:
 
It's been a tumultuous year for sure, with ups and downs not seen very often in our autism/Asperger world. But at every step GRASP has tried to be involved as a force for good on your behalf, on…
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Added by Michael John Carley on December 30, 2012 at 10:49pm — No Comments

Turnaround Time! Many Media Outlets Trying to Stop the Nonsense Other Outlets Created

All,

A slew of articles have emerged rebuffing the earlier attempts to negatively the autism spectrum in the wake of the Newtown horrors. As many of you all no doubt saw, certain media outlets described autism and Asperger's Syndrome as signifying a great potential for violent behavior . . . even though studies show the exact opposite. While TV news gives a lot of charlatan clinicians airtime, it really seemed more the cause of an irresponsible rush to report than to demonize…

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Added by Michael John Carley on December 18, 2012 at 5:00pm — 7 Comments

Statement from Michael John Carley on the Newtown, CT shootings

We here at GRASP (and I as the father of two school-age boys), cannot be more saddened and devastated by the news of the shootings in Newtown, CT. Our thoughts, wishes, prayers, and heaviest hearts go out to the victims and their families.

 

While it has not been confirmed, two major news outlets are now speculating that the shooter, Adam Lanza, had been diagnosed with Asperger's Syndrome. Much remains to be seen to provide the full picture of who this man was, but AS may…

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Added by Michael John Carley on December 14, 2012 at 11:30pm — 25 Comments

New Research Study Examines Autism/Asperger Research Studies Themselves

All:

In what will come as no surprise to those who suspected as much, and according to the attached study from Focus Autism Other Dev Disabl published online 5 December 2012, by Crosland, Clarke and Dunlap . . . research studies have failed to examine the spectrum in its entirety, thus perhaps skewing many of our perceptions.



Huge thanks to research pro and GRASP friend, Dr. Brenda Smith Myles, who comments . . .…

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Added by Michael John Carley on December 10, 2012 at 3:40pm — No Comments

DSM-5 Update: The Proposed Changes Were Approved. Thank you for trying

All:

Unfortunately, we lost this one. The changes to the proposed criteria for ASD in the new DSM, due out next Spring, were finalized as argued against. 

Things to take heart in:

1. GRASP will be encouraging clinicians to use the new ICD (International classifications of Diseases)…

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Added by Michael John Carley on December 3, 2012 at 11:17am — 2 Comments

Report from the first-ever Congressional Hearings on autism

First off, I want to thank everyone who wrote or posted messages of thanks and/or congratulations. As those of you who watched the proceedings easily saw . . . nobody was expecting THAT. Wow. Four hours of vaccine-causes-autism theory. I was stunned. We haven't been in conversations like that since 2005. This subject didn't just dominate the proceedings, it monopolized them.

What appears to have happened—which I can explain—is that SafeMinds, a vaccine theory organization,…

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Added by Michael John Carley on November 30, 2012 at 6:00pm — 25 Comments

GRASP invited to the congressional hearings on autism, Thursday, November 29.

Whew...GRASP members WILL be represented, and there will be some (if not all) spectrum representation! Thank you for all your calls that made this happen!…

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Added by Michael John Carley on November 26, 2012 at 4:36pm — 3 Comments

Understanding the Spectrum of Dysfunction with the DSM-5: A Report to GRASP's members

Please forward and/or re-post to anyone and anywhere you deem appropriate . . .

 

Understanding the Spectrum of Dysfunction with the DSM-5:

A Report to GRASP’s members

 

By Michael John Carley

 

 

On June 19, 2012, GRASP had a chance to talk with the Autism Spectrum Disorder (ASD) Workgroup of the proposed fifth edition of the Diagnostic and Statistical Manual (DSM-5). Higher-ranking Committee members present…

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Added by Michael John Carley on June 28, 2012 at 10:00pm — No Comments

DSM-5 Update: The Committee Starts to Dig OUT

Please forward to anyone or anywhere you deem appropriate . . . 
 
Dear all:
 
A slew of articles have recently come out. Dr. Allen Frances (architect of the DSM-IV) denounces the ideas and work habits of the Committee again (but this time in the New York Times), the Committee defends itself again, but cracks in the armor have appeared in the removal of two proposed ideas that fell under heavy criticism. No change—yet—to the proposed…
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Added by Michael John Carley on May 14, 2012 at 5:45pm — No Comments

The DSM-5 folks forgot to tell you how you can register your comments

We're so surprised (that's sarcasm, btw, influenced by added disappointment in the APA) . . . 
 
All:
 
(First off, please forward anywhere or to anyone you deem appropriate . . .)
 
Many of you have experienced difficulty trying to register your comments with the APA over the proposed changes to Autism Spectrum Disorder (ASD) in the forthcoming DSM-5. As we let you know a couple of days ago, the Committee has opened…
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Added by Michael John Carley on May 6, 2012 at 8:27pm — No Comments

GRASP Benefit Update: Journal Deadline Extended to April 29!

The 2012 GRASP benefit on Tuesday, May 15 at 6:30 p.m. at the League of Women Voters' Ballroom (4 West 43rd Street, between 5th and 6th avenues) in New York is getting closer! And we have extended the deadline for purchasing journal ads to April 29, 2012!
 
Can't make the event, and want to congratulate GRASP on a great year? Or
• Divine Neurotypical Award ("the DNA") winner, Stephanie McCaskill?
• Friend and Benefactor Award ("the FAB")…
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Added by Michael John Carley on April 25, 2012 at 9:00pm — No Comments

GRASP Benefit Update: Journal Deadline Extended to April 29!

The 2012 GRASP benefit on Tuesday, May 15 at 6:00 p.m. at the William Bennett Gallery in New York is getting closer! And we have extended the deadline for purchasing journal ads to April 29, 2012!
 
Can't make the event, and want to congratulate GRASP on a great year? Or
• Divine Neurotypical Award ("the DNA") winner, Stephanie McCaskill?
• Friend and Benefactor Award ("the FAB") winners, Chris and Terry Ballou?
• Thrust…
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Added by Michael John Carley on April 25, 2012 at 9:00pm — No Comments

NBC's "Dateline" Seeks a Family in NJ, NY or CT . . .

Dear tri-state families and clinicians:
 
The following is a request from a "Dateline" producer, Marjorie McAfee, whom GRASP has been in contact with several times (p.s. we like her) . . . 
 
Please note the following important points:
1. They're looking for a family that has a child with significant challenges who is soon to age out, or is aging out of the system (around 21 years old)
2. Deadline is June 1
3. A…
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Added by Michael John Carley on April 18, 2012 at 3:04pm — 3 Comments

GRASP Interfaith Event This Sunday, April 22, 10 a.m. in New York City

Dear all (with apologies to those outside the NYC area):
 
A reminder that this weekend, GRASP is hosting "Persons on the Autism Spectrum in Their Communities of Faith," a panel discussion about how our folks feel their behavioral differences are accepted or rejected by their respective…
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Added by Michael John Carley on April 18, 2012 at 2:35pm — 2 Comments

DSM-5 Update: The Committee Digs In

All:

 

DSM-5 developments have slowed down a tad, and we're partly responsible as we huddled close and (1) waited to see how the DSM Committee responded to the criticism, and (2) mapped out what we hope to, and can, do.

 

In short, the Committee isn't budging. Despite the controversy, the flawed field trials, the disingenuous damage control conducted by Committee members, and Fred Volkmar's certainty that more studies are forthcoming that back up the Yale and LSU…

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Added by Michael John Carley on April 9, 2012 at 3:19pm — 6 Comments

DSM-5 Updates! And GRASP featured in the newest Exceptional Parent Magazine

Please click here to see the 4-page profile in the latest issue of Exceptional Parent Magazine featuring GRASP, and Founder, Michael John Carley.

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