At GRASP, we get a lot of requests from people and institutions doing research on Aspergers/Autism who are looking for research subjects. Our firm belief is that our members should be compensated fairly for participating in research. With this in mind, however, we also want to help the under-funded and un-funded independent researchers who are doing creative work. If you would like to ask GRASP to post your research study here, please use this link.
Hello, My name is Angie Mejia and I am the research associate for the Academic Autistic Spectrum Partnership In Research and Education (AASPIRE for short). We are in the process of testing an online tool that allows adults on the autism spectrum create individualized reports to their PCPs with information that may help facilitate high quality primary care services. Please forward this email to anyone you think might be interested, and see the attached flyer for more information or to post on your campus. (Also, please email me if you wish to have hard copies of these flyers mailed to your office).
Angie Mejia, MA, CAS
Research Coordinator Academic Autistic Spectrum Partnership In Research and Education (AASPIRE)
Email: firstname.lastname@example.org Voice: 503-725-9634
Be the first to try out a tool that may improve
AASPIRE is a partnership between people on the autism spectrum, researchers, healthcare providers, and family members. We have created a healthcare toolkit to try to help people on the autism spectrum get better healthcare. We now want people to try it out in real life.
You are invited to participate if you are an adult on the autism spectrum, live in the U.S., and have a primary care provider or regular doctor. (You may also participate if you are a support person for an adult on the autism spectrum who cannot participate him/herself.) We will ask you to try out our online healthcare toolkit. As part of the study, you can create a personalized accommodations report to help your healthcare providers understand how to better serve you.
You will also have access to a website with information and worksheets about things like
You will take a 20-minute survey before and after using the toolkit. With your permission, we'll also ask your provider for feedback on the toolkit.
If you take part in the study, you will receive a
$30 Amazon.com gift card or check.
OHSU IRB #5580
Christina Nicolaidis, MD, MPH, Oregon Health & Science University
Dora Raymaker, MS, Autistic Self Advocacy Network
Angie Mejia, MA, CAS Research Coordinator Academic Autistic Spectrum Partnership In Research and Education (AASPIRE) Email: email@example.com or firstname.lastname@example.org Voice: 503-725-9634 Web: http://aaspire.org/
Researchers: Erinn Finke, PhD, CCC-SLP and Benjamin Hickerson, PhD
Institution: Penn State University
Study Title: “Exploring the Use of Video Games as a Serious Leisure Activity for College-age Students with and with Autism Spectrum Disorders”
IRB Approval Number: 42184
Interested in video games? Over the age of 18? Consider helping researchers at Penn State University with a study investigating the use of video games as a form of serious leisure.
If you choose to complete this survey, you will answer a series of questions requiring approximately 15 minutes of your time. Participation in this research study is voluntary. There is no anticipated risk to you in participating in this research.
If you complete the survey, you will need to provide contact information. This information will be used to contact you for a follow-up interview based on your responses. Not everyone who completes this survey will be contacted for further participation. Those who are selected for further participation will receive a $100 GameStop gift card.
All identifying information provided will be kept strictly confidential and will be known only by the investigators, Dr. Erinn Finke and Dr. Benjamin Hickerson. If you have questions or concerns please contact either Erinn at email@example.com or Ben at firstname.lastname@example.org.
Please click the following link to begin the survey: http://tinyurl.com/PSUseriousVG
End date: December 2013