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About GRASP
The People of GRASP
EXECUTIVE DIRECTOR
Michael John Carley
(Photo courtesy of Ron Haviv)
Michael John Carley received his B.A. from Hampshire
College in 1986 and his M.F.A. from Columbia University in 1989. As
the
Executive Director of GRASP, the largest organization comprised of adults
on the autism spectrum, he has spoken at conferences, hospitals, universities,
and health care organizations. He has appeared in the media widely, most
notably in the New York Times, Washington Post, NY Newsday, the
London Times, the Chronicle of Philanthropy, the Chronicle of Higher
Education,
NEWSWEEK OnAir, ABCNews, BBC News, Psychology Today, and on radio with Terry
Gross’ Fresh Air, and The Infinite Mind. NPR
News also aired a 12-minute
story in June of 2006 that featured he and GRASP. Carley was featured
in the documentary, "On the Spectrum," and in the
soon-to-be released documentary, "Neurotypical: The Movie." His
articles have
been published in magazines such as Autism Specrum News, Autism Spectrum
Quarterly, TAP (The Autism Perspective),
Autism/Asperger Digest; and in newsletters such as the OARacle. His first
book, Asperger's
From the Inside Out: A Supportive and Practical Guide for Anyone
with
Asperger's Syndrome, was released in April, 2008 to humbling
advance reviews (viewable by scrolling down the linked page).
Until 2001, Mr. Carley was the United Nations Representative
of Veterans for Peace, Inc. In that time, he was known primarily for his
work in Bosnia, and in Iraq as the Project Director of the internationally
acclaimed Iraq Water Project. Prior to 2001 he was a playwright
who enjoyed 15 productions and 10 readings of his plays in New York.
Along with his (then) 4-year old son, he was diagnosed
with AS in November of 2000. He lives with his wife, Kathryn Herzog, and
2 sons in Brooklyn.
DEPUTY DIRECTOR
Alison Alpert
.
. . is
a native New Yorker who has been a social worker in the city's nonprofits
and public hospitals. Her first ambition was to be a composer. She
has written a number of compositions including a three-voice fugue
for piano which follows all of the rules of counterpoint but still
sounds like it needs a lot of work.
Alison is a chaplain and visits with people in hospitals and nursing
homes. She also coordinates a program that helps people preparing to
leave prisons and re-enter New York City communities.
COMMUNICATIONS DIRECTOR
Yvona Fast
.
. . is also an author, food columnist,
freelance journalist, and an international speaker and disabilities
advocacy consultant. Her work in learning disabilities and neurological
impairments is based on her own personal experiences living with NLD
as well as interviews with individuals who live with these disabilities.
Her first book, Employment for Individuals with Asperger Syndrome
or Non-verbal Learning Disability: Stories and Strategies, is
a career guide for individuals with Asperger Syndrome or Non-Verbal
Learning disability. The Polish language edition of this book came
out in March 2008.
Yvona has spoken on issues of employment and disabilities to various groups,
including Families with ASD Autism Expo in Cincinnati, Ohio; the Canadian Learning
Disabilities Association, the Vermont Parent Information Center, and the Nonverbal
Learning Disabilities Association annual conference.
Yvona’s love of books first led her to become a librarian. A graduate
of the State University of NY, she has a BA degree in Geography and a
Masters in Library Science. She has worked as a librarian in prison,
public,
and academic libraries and spent five years working to set up libraries
for Bible colleges and seminaries in Eastern Europe.
Yvona has written
on many topics for various consumer magazines, including articles on
career issues for Educational Opportunity and Minority
Engineer. She has written about food for E: The Environment
Magazine and Home Cooking, and on health topics for Vibrant
Life and American Health and Fitness.
Her weekly food column, North
Country Kitchen, offers a medley of nutritional information,
historical facts, and easy, seasonal recipes. It runs in the Adirondack
Daily
Enterprise and the Lake Placid News. She is working on her second
book, My
Nine Lives, a memoir she's writing with her mother, a Holocaust
survivor. An excerpt, Escape from the Ghetto, won honorable
mention in the North Country Public Radio writing contest. Yvona
lives, writes,
cooks,
takes nature photos, and plays in the snow in winter and in the water
during the summer, all in the mountains and lakes of beautiful northern
New York State.
PUBLIC RELATIONS
Helen Murray
Born and raised in New York City, Helen spent most of her career in the fashion business working for Calvin Klein, Vogue, Harper’s Bazaar and, eventually, opening her own PR firm in Los Angeles. Additionally she has represented some of the best-known beauty and fashion photographers in the world.
Her youngest brother, Chris, is autistic and the star of the critically acclaimed documentary, “Dad’s in Heaven with Nixon” which was directed by their oldest brother Tom Murray. Released by Showtime in April 2010, the film chronicles their Mother’s fierce and unrelenting quest to help Chris find his place in the world.
When not shamelessly selling her brother Chris’ posters at every possible opportunity, Helen can be found somewhere in New York on her bike.
BOOKKEEPER
Jimmy Cheung
Jimmy Cheung, of Eight Square Accounting
was born in China and immigrated to the USA in 1997. He has worked for
Eight Square since 2007, and also works in an optical store.
SPANISH LANGUAGE CONSULTANT
Juan Molinari
Juan
Molinari was recently diagnosed with Asperger's syndrome as well as a
surprisingly acute case of ADHD and has the paperwork to prove it. He
wants everybody to know for their own safety. He also manages the technical
aspects of the Not
For Tourists web site and some
other stuff that nobody knows about.
BOARD OF DIRECTORS
John Courtney, MSW
Bio and picture coming soon.
Nick Dubin, PhD
A neuropsychologist diagnosed Nick Dubin with Asperger's Syndrome in 2004. Since then Nick has been a passionate advocate on issues related to bullying with regards to the autism spectrum. Dr. Dubin has a Bachelor's degree in communications from Oakland University, a Masters degree in special education from the University of Detroit Mercy and a Specialist degree from the Michigan School of Professional Psychology, where he recently earned his Doctorate in Psychology. His work has been praised by Stephen Shore, Carol Gray, Michael John Carley, Robert Naseef and Bill Stillman. Dr. Dubin authored three books and produced three DVD's, all relating to the autism spectrum. Dubin has been featured in Hour Detroit Magazine, CBS Detroit, Signature Magazine, Radio Disney, The Detroit News, National Public Radio and on Fox 2 (Detroit). Dubin also contributes to the Autism-Asperger Digest as a collumnist and has presented at over 80 conferences and seminars, including as the keynote speaker for the Autism Society of Michigan's fall conference and as a two time presenter at the Autism Society of America's national conference. He also serves on the board of directors of the Asperger Society of Michigan.
Dena Gassner, MSW
Dena Gassner is the second of three generations of
people with Autism Spectrum Disorder in her family. At 44, she has survived
multiple misdiagnoses and resulting disabling pharmaceutical institutionalization.
Disabled not by autism, but by misdiagnoses, she survived mistaken labels
including "ADHD, Bi-polar, Depression and PTSD". She was finally saved
through God's grace embodied in her son, Patrick, who also has autism.
Many seek her uncanny insight into seeking wholeness and authenticity
in charging toward a life not separate from, but wholly embracing life
with autism.
Her activities include; Board member for SEMAR (the Southeastern Jurisdictional
United Methodist Church Agency for Rehabilitation); Chair, Kentucky Conference
Special Needs Committee; Inclusion Ministries Consultant and Chair of
the Special Needs Ministry Task Force for the Kentucky Conference of the
United Methodist Church; Founding Member, ASD Consortium of Kentucky;
Advocacy Consultant for the ARC of Kentucky; member, Inclusion Network
of Cincinnati. She holds a Master's Degree in Social Work from the University
of Kentucky having studied as a multidisciplinary evaluator at Children's
Hospital's Center for Developmental Disorders. She is a frequent contributor
to local newspapers and the MAAP newsletter and recently had her first
publication accepted for the Autism/Asperger's Digest. With her son, Patrick,
she is a politically active advocate for persons with disabilities in
her home state of Kentucky.
Brian R. King, LCSW (Chair)
Brian R. King is a Licensed Clinical Social Worker in private practice
in Naperville, IL in which he brings a unique four fold perspective to
the world. Brian is not only a father of three sons on the Autism
Spectrum and has a practice working with a variety of clients
including those with Asperger’s and their families. Brian and his
wife
Cathy are also blessed with Asperger’s.
Through his books, website
and interactive presentations Brian
has become known worldwide for his positive approach to Living the
Asperger’s and Human experience. He is dedicating his time to serving
as an Ambassador between the Asperger and Neurotypical communities.
His
goal is to help both communities learn to better communicate,
appreciate and cooperate with each other in a spirit of mutual
respect.
David Tobis, Ph.D.
David Tobis is the Executive Director of the Fund for Social Change which
he founded in 2002. The Fund administers three grant making programs:
The Child Welfare Fund, the OMRDD/FAR Fund Collaborative and the Partnership
for Family Supports and Justice. For the past 25 years he has worked to
reform child welfare in New York and the United States. During ten of
those years he worked as a consultant to UNICEF and the World Bank to
prevent children, the disabled and the elderly from being placed in long-term
residential institutions in Eastern Europe and the former Soviet Union,
particularly in Lithuania, Romania, Moldova and Armenia.
He is the author of numerous reports and articles on New York City's foster
care system that have led to significant changes in service delivery.
He wrote a monograph published by the World Bank, The Transition from
Residential Institutions to Community-Based Services in Eastern Europe
and the Former Soviet Union that has become the basis for the World Bank's
strategy in the area. He also wrote the article for the Encyclopedia Britannica's
Book of the Year on the Child Welfare Crisis throughout the world.
He was one of the national leaders of the Family Preservation movement
to prevent unnecessary out-of-home placement in the foster care, mental
health and juvenile justice fields. He is the founder and was the Chairperson
of the Tri-State Network of Intensive Family Preservation Services and
helped to found the Intensive Family Preservation Services National Network.
He was previously Director of Human Services for New York City Council
President Carol Bellamy and led that office's successful efforts to reform
New York's foster care system. He began his child welfare career working
in New Jersey's public child welfare agency.
He was a Fulbright cholar to Guatemala in 1966-67 and co-edited a book,
Guatemala: And So Victory is Born, Even in the Bitterest Hour, published
in 1974 by NACLA in English and Siglo XXI in Spanish. He was a Revson
Fellow at Columbia University in 1987-88, awarded for work that improves
the conditions of life in New York City.
He is currently on the Board of Directors of the Urban Justice Center
(chairman 1987-99), High Tide Dance, Inc. and GRASP. Previously he was
on the Board of Directors of Behavioral Sciences Institute (Seattle, Washington)
and the Brotherhood/SisterSol.
He graduated from Williams College and received a Ph.D. in sociology from
Yale University.
Karl Wittig, P.E.
Karl Wittig was diagnosed at the age of 44 years with a mild case of Asperger Syndrome. He worked as an electrical engineer doing research and development in the areas of electronics, computers, video, image processing, and communications for over 28 years, working for the research divisions of major electronics corporations.
Karl has a B. S. with distinction in Applied Physics (1976) and an M. Eng. in Electrical Engineering (1977), both from Cornell University, as well as an M. S. in Computer Science (1987) from New York University. A member of two engineering honor societies (Tau Beta Pi and Eta Kappa Nu), he holds 19 U. S. patents, and is a registered professional engineer in the state of New York.
As a young child, Karl was âobsessedâ with virtually anything electrical or mechanical, which led to his choice of career. Although he had exhibited quite a few autistic traits both as a child and as an adult, and had suspected for a number of years that he might suffer from such a condition, he was not diagnosed until relatively late in life. As a result of his experiences, he is deeply interested in increasing public awareness about the milder conditions of the autism spectrum.
ADVISORY BOARD
Julie Bundrick
Julie Bundrick has been diagnosed with Major Depressive
Disorder, Bipolar Disorder, Attention-Deficit/Hyperactivity Disorder,
and Borderline Personality Disorder, and in August of 2002 at the age
of 34 she was diagnosed with Asperger's Syndrome. Julie works for The
Furniture Box in Geneva, Illinois where she is the Floor Display Coordinator.
She also performs childcare duties for a local church as well as for other
individual families in her area. Julie is a volunteer for Orthokids at
Delnor Hospital's Health and Wellness Center which provides aquatic therapy
for children with various mental and/or physical disabilities—including
Autism and Asperger Syndrome. This year, Julie also served as a co-coordinator
assisting with booths and presenters for the Illinois Health and Wellness
Fair. Her special interests include problem-solving, working puzzles,
fishing with her Dad, spending time with her parents, hiking in the fall,
and helping others to love and enjoy their lives and who they are as individuals.
Cathy Collins
After many years of therapy, Cathy Collins found out
that she was on the spectrum, with nonverbal learning disability, after
seeking a referral to a specialist because of what she had learned about
Aspergers from Michael John Carley on a broadcast of Fresh Air. A native
Californian, Cathy has an M.A. in Latin American Studies from UCLA and
an M.A. from George Washington University in Human Resource Development.
After graduating from college, she spent a year in Calexico, on the Mexican
border, as a second grade teacher in a bilingual education program for
the children of migrant farm workers—a totally wrong fit for someone
with challenges in social skills and deciphering nonverbal cues! She has
worked for the U.S. Coast Guard for over ten years in her primary field
of intelligence research. Prior to her current assignment in Virginia,
she spent six years in New York City at Governors Island. She also worked
for the Defense Intelligence Agency in Washington, D.C. and London, England.
Her special area of expertise is Latin America, and she participates in
a number of inter-agency conferences on Caribbean affairs. As a collateral
duty, she serves as Federal Women’s Program Manager for U.S. Coast
Guard Atlantic Area. Special interests are Haitian history and culture,
Jungian psychology, collecting folk art, and reading the works of Charles
Dickens.
Rebecca Gbasha
Rebecca was born in Oklahoma and grew up in Southern
California, where she received a B.A. in Biology. Joining the great exodus
to Oregon in the early 1970's, she obtained MS and PhD degrees in Environmental
Geography. For the next 20 years she taught at universities in Oklahoma,
Massachusetts, and Iowa. She retired early in 2000, and promptly dug up
her yard for a flower garden. She has a typical sorry tale of difficult
life experiences, misdiagnoses, mistreatments, and was diagnosed with
Asperger Syndrome in 2001. Rebecca currently lives in Iowa City, Iowa,
and facilitates the Iowa City/Coralville GRASP Support Network. She also
brews a mean cup of coffee, makes a fantastic red quinoa salad, and has
a house fulll of houseplants and African folk art.
Kate Goldfield
Kate Goldfield is a 22 year
old psychology major from Standish, Maine, who attended Goucher College
in Baltimore. She has written several articles on issues relevant to adults
with autism spectrum disorders, and has been published in the Baltimore
Sun, Hartford Courant, and forthcoming December 2006, The Autism Perspective
magazine. She has spoken at the first Penn Autism Network Conference as
a panelist, and at the 2006 ASPEN Spring Conference. She has been involved
with Asperger's and autism groups in Maine, Baltimore, and Washington,
DC, as well as several online groups. After discovering her own Asperger's
Syndrome two years ago, she decided she wanted to get as involved as possible
in the autism community and try to make the path easier for those who
come after her.
Temple Grandin, Ph.D.
Temple Grandin, Ph.D., is inarguably the most accomplished
and well-known adult with autism in the world. She has been featured on
major television programs, such as "ABC's Primetime Live", the
"Today Show", "Larry King Live", "48 Hours"
and "20/20" and written up in national publications, such as
Time magazine, People magazine, Forbes, U.S. News and World Report, and
New York Times. Among numerous other recognitions by media, Bravo Cable
did a half-hour show on her life, and she was one of the "challenged"
people featured in the best-selling book, Anthropologist from Mars.
Dr. Grandin didn't talk until she was three and a half years old, communicating
her frustration instead by screaming, peeping and humming. In 1950, she
was labeled "autistic," and her parents were told she should
be institutionalized. She tells her story of "groping her way from
the far side of darkness" in her book Emergence: Labeled Autistic,
a book which stunned the world because, until its publication, most professionals
and parents assumed being diagnosed "autistic" was virtually
a death sentence to achievement or productivity in life.
Dr. Grandin has become a prominent author and speaker on the subject of
autism because "I have read enough to know that there are still many
parents, and, yes, professionals, too, who believe that 'once autistic,
always autistic.' This dictum has meant sad and sorry lives for many children
diagnosed, as I was in early life, as autistic. To these people, it is
incomprehensible that the characteristics of autism can be modified and
controlled. However, I feel strongly that I am living proof that they
can." (Taken from Emergence: Labeled Autistic)
Even though she was considered "weird" in her young school years,
she eventually found a mentor, who recognized her interests and abilities,
which she later expanded into becoming a successful livestock handling
equipment designer, one of very few in the world. She has designed the
facilities in which half the cattle are handled in the United States,
consulting for firms such as Burger King, McDonald's, Swift and others.
She presently works as an Associate Professor at Colorado State University
but also speaks around the world on both autism and cattle handling.
Dr. Grandin's current best seller is Animals in Translation. She also
authored the best seller - Thinking in Pictures and Other Reports From
My Life With Autism and produced videos - "Visual Thinking,"
"Careers" and "Medications" VHS; and Dr. Temple Grandin
(DVD).
Xenia Kathy Grant
Xenia Kathy Grant lives and works as a respite provider
in Denver, CO. She was officially diagnosed as High-Functioning Autistic
in 2001, but had known that she was on the spectrum since 1986. She has
a degree in political science from Maryville College in St. Louis (1987)
and a Certificate of Completion in Medical Transcription from the Vanderschmidt
School (1991). She has had many jobs since graduating from college. She
has been a telemarketer, bookshelver, factory worker, medical transcriptionist,
worked in the mail room, done data entry work, cleaned cat cages at a
vet's office, and now has been doing respite work for the past 5 years.
She is on the Board of the local autism chapter, on the Board of Autism
National Committee, and has been with Autism Network International since
it's beginning in 1992. She is involved with many church activities at
Holy Transfiguration Orthodox Church. (Russian Orthodox) Her interests
are: history, geography, Russian Orthodoxy, flags, collecting things in
foreign languages, maps, cats, and Battlestar Galactica.
Robert E. Hedin
. . . graduated fourth in his class from Technical
High School in Springfield, MA in 1955, receiving the Rensselaer medal
as the outstanding math and science student. He attended Rensselaer Polytechnic
Institute in Troy, NY on a scholarship where his major was E.E. While
at R.P.I., he met his future wife. After dropping out of school in 1957,
he was hired as a broadcast technician and cameraman by a local TV station,
WWLP, with the proviso that he would obtain the necessary First Class
Commercial Radiotelephone License within six months. He advanced to the
position of weekend supervisor. In 1964 he married his college sweetheart
who was an R.N. with a B.S. and M.S. in nursing.
In 1966, they moved to the Philadelphia area after he had obtained a job
at a major network station. He and his wife have three children, two boys
and a girl, and have been married for over forty years. His children all
graduated from private colleges without any student loans, although they
were all attending college at one time. Financial planning has been one
of his interests for many years. In 1998 he retired early in order to
spend more time with the family, and to enjoy travel and hobbies. Bob
has been an avid computer enthusiast for over 20 years; he taught himself
basic programming in the early days of computers when they first appeared
on the home market. He has been an amateur radio operator for over 50
years, and active in genealogy since retiring. His newest interest is
in Asperger’s Syndrome. In Dec. of 2001 he read an article in Wired
magazine titled, "The Geek Syndrome", wondering if it might
apply to one of their sons. In Feb. of 2003 an article appeared in Parade
Magazine on Aspergers; the description of AS fit their son more clearly.
After reading the article himself, their son agreed, "That's me!"
After months of internet searching, internet AS forums, and reading many
books, he realized that his other two children had a number of AS traits,
as well as himself. He joined a local support group for parents of AS
children, and another for families of "adult children" with
AS. Most of the support groups are for parents. After seeing the benefit
of support groups for parents, he saw that a support group for adults
with AS/HFA was sorely needed; there was no such group in the area. Fortunately
there was such a group in New York City called GRASP. The founder of our
support group for families of "adult children", Tina Caterino,
arranged a conference call with GRASP's executive director, Michael John
Carley to discuss the idea of a support group in the Philadelphia. With
their encouragement, Bob launched a membership drive. Adults with AS/HFA
have responded, along with parents, and professionals. The membership
stands at 26 and growing. The first meeting was held in Berwyn, PA on
Sat. Jan. 8, 2005. Meetings are scheduled for the second Saturday of each
month. Between meetings, a listserv is available for online members to
discuss issues and keep in touch with one another.
Perry Hoffman
In other news, please join us in welcoming Perry Hoffman
to our Advisory Board. Perry was officially diagnosed with autism in first
grade but was mainstreamed in 6th grade. He made the honor roll at Midwood,
H.S. (Brooklyn). He later earned his B.A. in English from Hunter College
in 1993 and recently completed his Masters in Secondary Education at Queens
College. Perry currently works as a case manager for the NYC Dept. of
Health and Mental Hygiene where he provides advocacy, referrals and pre-natal
care to pregnant women. He was a featured speaker at the MAAP conferences
in 1996 in Chicago and 2000 in Tampa. He lastly won the 2000 and 2001
Recognition Award from the Autism Society of America. Perry resides in
Bayside, Queens.
Nathan P. Johansen
I don't feel like I've done much more than grown up in a rural Colorado setting, moved to Denver, graduated high school, then dropped out of college at CU Boulder for Aerospace Engineering, went to Germany for a decade working on computer-to-plate publishing technologies, traveled to parts of Europe, Asia, and Australia in my free time, then came back home, failed at a relationship with my boyfriend Chad, and am now trying to reinvent life through the "now it makes perfect sense to me" lenses of Autism. I recite Pi for fun until I'm told to shut up, or the number of times Cesium 133 has to vibrate to measure one second in an atomic fountain clock, scribble out the mathematics for deriving the value of Phi from a Fibonacci series, or memorize a box of Trivial Pursuit® cards. I would be lost without certain things like my radio plugged into my ears, writing with my special black inky pen, spending quiet time alone reading the comics pages and doing Sudoku puzzles, having a conversation with friends on my balcony, or being separated from my bookshelf for too long. Quantum theory fascinates me, and computers have always been my most stable and predictable friends in life. I'm one of two autistic self-advocates appointed to the Colorado Autism Commission, and a facilitator for the Colorado GRASP groups in Denver and Boulder.
Allen Markman
Allen Markman received his B.A. from Queens College
in 1975 and his M.A. from the New School in 1977.
Mr. Markman is a psychiatric survivor who was active in the psychiatric
patients' rights movement from 1971 to 1986. He hosted a monthly radio
program, the Madness Network, on listener-sponsored WBAI radio from 1980
to 1986 under the auspices of Project Release.
Mr. Markman is a (retired) Pacifica Radio veteran, having served as WBAI
Radio's subscriptions director for 17 years.
He was diagnosed with Asperger's Syndrome in 2002.
He is a co-facilitator of the New York City Adult Asperger Syndrome Support
Group. It was his idea for an organization in 2002 that led to the formation
of GRASP.
Dr. Irma Jacqueline Ozer, Esq.
Bio forthcoming.
Lars Perner, Ph.D.
Lars is an Assistantt Professor of Marketing at San
Diego State Universityy and holds a Ph.D. in Marketing from the University
of Southern California. He became interested in autism spectrum conditions
after being diagnosed with Asperger Syndrome at age 32 and found that
his background in consumer psychology (e.g., information processing, perception,
interpretation, motivation) and international business (e.g., cultural
expectations and communications styles) could be applied to understanding
autism. Lars has written extensively on the paradoxical nature of autism
and is a frequent presenter at autism conferences on topics such as life
planning, college preparation and succcess, cognitive processes, the dynamics
of autism, perspectives on autism, and ther role of values in approaching
the treatment of the condition. He is currently combining his interests
in marketing and autism by studying how characteristics such as sensory
vulnerabilities, difficulties in communication, and dislike of change
affect the shopping experiences of individuals on the autism specttrum.
Many of Lars' autism materials are available at http://www.aspergerssyndrome.org.
Branden Plank
"Growing up, we moved from place to place, - at least 8 different
schools.- So not making many friends seemed understandable." says
Branden. This year he will be married 25 years, has 2 college age kids,
and held the same job for over 20 years. He is a member of a born again
church since 1981 and served as a deacon for 13 years, and has also led
small group meetings in his home. “Yet I lived in denial of the
obvious” Diagnosed with AS in the fall of 2004, at the age of 45,
many things finally made sense. Now, a GRASP co-facilitator he has found
a joy and comfort in a community of folks like himself. "Helping
and encouraging others is very fulfilling!" His love for photography
led to an associate degree in Pittsburgh in 1979 and has won various awards.
This outlet of expression laid dormant for too long is now revived in
digital photography. "I have time again for this passion now that
the kids are grown."
Trista Rupp Plott
Trista Plott, now 33, was diagnosed after her daughter's
diagnosis this past January. Her daughter is ten now, but at 17 months,
Trista believed her daughter was autistic. After an evaluation in 1996,
her daughter was not diagnosed. Aspergers was not well known in their
area ten years ago. Earlier this year, her daughter was diagnosed with
AS, which paved the road to self discovery.
Trista says of Aspergers, "I always knew there was something different
about myself and my family, the diagnosis gives me an explanation. Living
the experience of AS without the terminology, and suddenly having words
to describe it, to me, is transcendental."
After her daughter's diagnosis, she realized that this was not just her
daughter, but also her. The clinical websites were confusing at first.
When she started to read personal accounts of people living with AS/HFA,
her suspicions were confirmed.
She was looking for an adult group in her area, but there wasn't one.
A researcher from NYU forwarded one of Trista's emails to Michael Carley,
who responded immediately. Trista is the facilitator for ERIE GRASP. With
Michael Carley's encouragement, Trista started the GRASP chapter, which
has been steadily growing since.
Trista lives in North East, PA with her husband and their four children.
Trista volunteers for raogk.org, researching family trees for those seeking
genealogical information. Trista has also recently started writing and
proofreading press releases for an online furniture company. Some other
hobbies (of the moment) include gardening and painting. Trista also prides
herself with being able to clear any room at a family event within a ten
minute time period.
One of the main goals Trista hopes to accomplish with GRASP ERIE, is to
raise awareness in her community, and to build an effective employment
network for people on the spectrum. Although the Office for Vocational
Rehabilitation offers job training, there is no service for job placement.
Stephen Shore
Diagnosed with "Atypical Development with strong
autistic tendencies" Stephen Shore was viewed as "too sick"
to be treated on an outpatient basis and recommended for institutionalization.
Nonverbal until four, and with much help from his parents, teachers, and
others, Stephen Shore is now completing his doctoral degree in special
education at Boston University with a focus on helping people on the autism
spectrum develop their capacities to the fullest extent possible.
In addition to working with children and talking about life on the autism
spectrum, Stephen presents and consults internationally on adult issues
pertinent to education, relationships, employment, advocacy, and disclosure
as discussed in his book Beyond the Wall: Personal Experiences with
Autism and Asperger Syndrome, the recently released Ask and Tell:
Self-advocacy and Disclosure for People on the Autism Spectrum, and
numerous other writings.
A former board member of the Autism Society of America, Stephen serves
as board president of the Asperger’s Association of New England
as well as for the Board of Directors for Unlocking Autism, the Autism
Services Association of Massachusetts, MAAP, and the College Internship
Program.
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